Tuesday, April 23, 2024

Autism Diagnosis



We love bubble baths! 

Wild hair, don't care! 

Sweet soccer girl! 

The trampoline is her favorite!


 Today was the day we have been waiting for, for quite some time! We officially have a diagnosis for Susie of Autism with a Language Impairment. She was diagnosed as a level 3 autism, which is the most severe level. 

While we knew this day was coming, it was still emotional. We have a wide range of emotions, but mostly we are thankful for answers. While we wish things could be different, these are the cards we have been dealt. Although Susies childhood looks different than we planned, she still lives a beautiful and full life. We feel blessed that God chose us to be her family.

Thank you for all the prayers and kind words over the last several months. We appreciate them more than we can express. However, our journey is just beginning. This diagnosis opens up new opportunities for us to learn and grow and we hope you continue to join us on this journey. 

 

Wednesday, April 10, 2024

A Long Time Coming

 Warmer days are coming, and boy is Susie happy about it! She is spending a lot of time outside and on the trampoline or playing with bubbles! 

Susie played soccer!

Susie has been loving the trampoline. 

Susie saw some dinosaurs.

We had Susie's parent teacher conferences this last week! She is doing so well! I am going to share some pictures of all the exciting things she has been doing at school!

She loves to build!

Motor play! 

Coloring! 


Watering the classroom plant! 

We also got a surprising, yet expected phone call on Tuesday April 9th at 3:00 (this part is important for the story). We have been waiting on this phone call since late August, so when I saw "children's mercy" on the caller ID my heart stopped! They were calling to finally schedule Susie's behavioral evaluation, in which we will hopefully get answers as to what causes Susie's delays. Their first available appointment is Monday, April 15!! I was shocked, we waited so long, and now we don't even have to wait a week! 

We have to be at the downtown Kansas City Children's Mercy location at 8:30 am. The evaluation will take around 4 hours. I know it will be a long, emotional day, but we are ready for answers and to move forward with her learning journey! We will not get results until April 23rd, through a tele-health conference. 

We ask for prayers for all of us on Monday. Please pray for patience for Susie. Emotional stability for me and Ty. Informative and knowledgeable doctors, and most of all please pray that we get answers that help us move forward and learn about how to help Susie continue to thrive. 

Sweet Summertime

 Summer is here and it's Susie's favorite time of year, POOL TIME. Susie adores the pool, specifically the Hamilton Pool.  For the m...